ASSERT's Charity Film Series

The UK based Angelman Syndrome Charity (AS Support, Education & Research Trust, ASSERT) is creating a series of films to help explain what Angelman Syndrome is, how it occurs and how it effects daily life. This series is on-going, together we hope they help raise awareness, and support families effected by Angelman Syndrome. 


We are delighted that 'What is Angelman Syndrome?'
won the Bronze Award at The Charity Film Awards 2018. 

 

What is Angelman Syndrome?
The question everyone wants to know. This short film (the first in the series) gives you an insight into what somebody with Angelman Syndrome is like and how it effects the individuals and their family or carers on a daily basis. This rare genetic disorder effects families across the world and is often recognised by the persons very smiley and happy behaviour.

'My sibling has Angelman Syndrome' is a film about young carers. It offers an insight into the emotions and experiences of children with physically & mentally disabled siblings. The film is exclusively narrated by siblings who wanted to share their thoughts on what it’s really like to grow up as a young carer. It highlights the maturity required from these young people as they discuss the difficulties and the positives of their daily life. 

 

This film gives an insight into what behaviours are commonly seen in people with Angelman Syndrome. You get to hear from family's who have adapted their lives to suit Angelman Syndrome and it's characteristics. Some common behaviours include; determination, excitement, love of food, therefore grabbing food, pulling hair, stubborness, chewing clothes, a short attention span, hugging, and reaching out for objects and people in the surrounding environment. 

Communication Part One offers an overview of what it might be like to communicate with somebody that has Angelman Syndrome. It briefly covers the various types of communication methods such as PODD books or Proloquo2go. Families give an insight into their experiences and Professionals advise on what to expect moving forward. The film highlights that individuals communicate in various ways and at different levels of interaction. Part two will take a more in depth look into communication... it's coming soon!

 

Epilepsy affects 80% of people with Angelman Syndrome at some point in their lives. This film explains how people may be affected by Epilepsy, how they noticed it, when it occurred and how they treated it. It offers some brief advice on how to spot it and help get it diagnosed, along with describing what the most common types of seizure symptoms are. Naturally, Epilepsy is a very complex subject so it's important to treat each case differently. Please make sure you talk to your doctor if you think your child has any seizures - It's very important to have it diagnosed and treated.

Alternative and Augmentative Communication is a very important part of life with Angelman Syndrome. This film, 'Starting AAC', offers an introduction on how to begin using AAC to communicate with somebody that has Angelman Syndrome. It looks into what kind of language should be used and what you might expect to find at the beginning. The professionals in this film offer their knowledge and tips to help prepare families and carers ready for starting to use AAC. It’s inspiring to see how individuals with Angelman Syndrome can utilise the AAC systems to communicate so much of their personality.

 

Please keep an eye out for more films here... more in this series are on the way.

 

Thank you to all those who shared their expertise, stories and smiles in the films.

Produced & Directed by Molly Brown, seespeakhear.com with Lottie Fox-Jones, lottiefoxjones.com

Music by Audio Network. Created for ASSERT Registered UK Charity.
Visit www.angelmanuk.org to find out more about Angelman Syndrome.